Isolation Log: Covid Date 11.a.20

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Jude & Simon enjoy snuggling.

It’s like Christmas! March seems like it was 20 years ago, even though it was only 2 months. When everything was going into lockdown, I had ordered a bunch of supplies online. With the exception of the flour (mostly because I was out of flour), I completely forgot that I had ordered anything.

Last week, I finally received my order of allergy-friendly flour and allergy-friendly “milk.” I was overjoyed. This week, more packages have arrived that I totally do not remember ordering. But they have my name on them, and they are all things I use on a regular basis, so must be I did.

The only way for me to stay safe is to stay home. Unfortunately, people in my area are not being responsible. They are not wearing masks or social distancing. I wear a mask, but if other people do not follow the rules, then it is not safe for me to be out. I will stay home.

In focusing on essentials, the only things I need are food and to continue working.

For food, people have been stellar about bringing me food and filling my cooler. I do not like asking for help, and I do not like to put other people at risk, so I am trying to find a work-around so I do not have to go to the grocery store. I am also trying to find a work-around so that the amazing people who have been helping me can have a break. The doctor told me not to go to the stores, and I do not see the doctor again until July, so those are the instructions I’m following.

As mentioned in a previous post, I have decided to only grocery shop once per month now, similar to when my grandparents had the farm. Worst case scenario, I have to attempt to go to the store once a month at a low traffic time. Best case scenario, I try to figure out how to get things delivered to me. The challenge with delivery is that I cannot order fresh items.

Trying to figure out my new normal, I did find a local company has started to offer touchless food deliveries to people. I will be trying this service at the end of June to order my July groceries. If it goes well, I plan to use it for the foreseeable future. The service uses refrigerated trucks, so I can order fresh and frozen items. They have a “menu” from which to order. It is a company that traditionally services restaurants and schools and is now delivering locally to homes. If all goes well, I will use the service for as long as they provide it. 

I did have a friend drop-off supplies to my cooler today and I am so grateful. I would not be making it through this pandemic if not for so many people helping me. In adjusting to our new normal, I am trying to find other services to “help” me so that I am not taxing my informal supports.

It looks like having coolers in front of homes for food supply drop-offs is going to be a thing here for the foreseeable future.

In other news, I received an application for absentee voting a few weeks ago in the mail. I filled it out saying I need to vote by mail for every election for the rest of the year. Today, I received my first vote-by-mail ballot. It is for the local school board and school budget election. This is my first time voting in a school election. 

The reason why I am voting in a school election now is because the ballot was mailed to my house. It is so much easier for me to vote by mail than it is for me to vote in-person. I wish we could vote by mail for every single election all of the time.

One of the biggest surprises about the mail-in ballot is how easy it is to understand. Not only is voting in person a major pain, but it is difficult to understand the new electronic voting machines that they have at in-person polling places. I found it much easier to understand how to vote with the paper ballot than I do on the machine in person.

There are some throw-backs making a return with this pandemic that I am hoping will stay for the long-term. I am super excited to try this local company offering grocery delivery service at the end of June to obtain my July groceries. I also love voting by mail. It is so much easier and convenient than voting in person. A few weeks ago, I used the special orange envelope to get stamps through my maiboxl from the post office. My mailbox is my favorite accessory right now.

I am loving these services and so grateful to have them. These services are bright spots in a challenging time. Right now, I am super happy about anything that makes my life easier and limits my contact with other people. When I feel safe to interact, I will. It is still too soon and we have the second wave coming. 

What services have you found helpful in the pandemic?

Isolation Log: Covid Date 10.a.20

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Jude likes to snuggle on the couch.

One of my really good friends of over 20 years passed away from COVID this week. This is the fourth person in 9 weeks that I know who has died of COVID. This pandemic has been very hard for me emotionally, and the fact that I am surrounded by irresponsible and ignorant people is not helping. 

Last weekend I went into my work office and protesters were downtown wanting everything to reopen. I overheard one of the evil neighbor kids asking their parent what coronavirus was, and the parent responded “something people made up so you don’t have to go to school.” 

My local school district has been delivering lawn signs to congratulate graduating seniors. They are doing this in large groups of 15-20 staff where no one wears a mask or bothers to social distance. They were all milling around in the street and hugging. 

I will remember the irresponsibility and blatant disregard for safety displayed by my local school district by voting “no” on the school budget increase this year.

Everytime I see these things, not only does it make me terrified to leave my house, but it just plain makes me cry. I do not understand how people can be so ignorant and think that this is fake, when I have experienced such profound loss and death.

One person commented this week that everyone who is dying is elderly. This is not true. Of the four people I know who have died, they have all been in good health with no pre-existing conditions and under the age of 65. I have another friend whose 6 year old is currently in ICU with the disease.

How many more people have to die before people in my area wake up and take this seriously?

I am heartbroken and terrified.

Protesters complain about their “rights” and say they don’t have to wear a mask.

If you refuse to wear a mask, you should be charged with negligent homicide. 

That’s what it is. It is a very simple concept to understand. It is exactly like drinking and driving. If you are stupid enough to drive when you have been drinking, you can kill someone. If you are stupid enough to leave your house without wearing a mask and staying 6 feet away from people, you can kill someone. They are one and the same. The only difference is that a car accident is a quick death; COVID-19 is a slow, long, painful one. 

My greatest challenges are figuring out how to obtain food and working. As long as I can do those two things, I can manage everything else. The challenge is that I can only control myself. I cannot control people around me. If people around me refuse to wear a mask and social distance, then it is not safe for me to leave my house. That makes it very challenging for me to work.

My region of New York is reopening. Of course, it is too soon and people are acting stupidly. Our COVID rate has tripled since reopening started. But that’s ok. People in my county do not care if people live or die. I never thought I would live in a world where the value of a human life is nothing, but here we are. 

On to the good stuff for this week …

After waiting over 7 weeks on an order I placed back in March, the allergy friendly flour and allergy friendly “milk” I ordered finally arrived! I now have food to be able to eat breakfast again!

Once the flour and milk are gone, that is going to be it for a very long time. The factories that make my allergy friendly specialty items are closed. They estimate that when they do reopen, it will take them at least 2 months to get back to capacity. 

I currently have about 8 cups of allergy friendly flour. However, I am going to set about 2 cups of it aside to save for Christmas. I am anticipating that it will be a long time until I am able to obtain my speciality items again, and if I save 2 cups for Christmas, I can make something yummy to look forward to when we enter the second or even third wave of the pandemic.

I am so happy to be able to have breakfast again!

I have been working on minimizing my bathroom, and will be doing a minimalist bathroom post soon.

My neuro symptoms have been getting worse with the heat and I am relying on my rollator more. Luckily, I do not have to drive to work right now, so I am not a danger to anyone else when my vision goes and I am not balancing well. 

As challenging as the tech issues are, I am very happy to be able to work from home. I enjoy being with my cats. I feel safe here. I am also afraid of what will happen to my house once I do go back to work with all of the children running around unsupervised. It was Memorial Day weekend last year when someone took a baseball bat to the side of my house and traumatized my cats. 

Right now, I am taking one day at a time.

I am working from home with my cats where I am safe and very happy about it. I am so thankful to still have a job.

I would love to be able to go out and do something, but unfortunately, I am unable to do so because other people act stupidly. If everyone would wear a mask and abide by social distancing, I would be able to leave my house safely. I can only dream. 

After knowing so many people who have died recently, I don’t want to be next. I can’t leave orphans.

Wear a mask. Stay 6 feet away. 

Old Habits Die Hard

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Simon in the window enjoying fresh air.

In times of stress, it is common to fall back on our coping skills. Some coping skills are positive and some coping skills are negative. As we age, we gradually replace negative coping skills with positive coping skills. When you know better, you do better.

Some coping skills are not necessarily negative, but there comes a point when a particular coping skill is no longer needed because you have overcome the problem. Either the life situation has changed so that you do not have that problem anymore to require a coping skill, or you have adapted to the situation in such a way that it is no longer a crisis which prompts coping skills.

This coronavirus pandemic is unlike anything we have ever lived through before. It is prompting all types of coping skills in people, myself included. 

I keep trying to find something to equate to our current situation. After all, the beauty of coping skills is that if they work for one crisis, they will probably work for another.

I spoke earlier how the pandemic is worse than when I was in New York City on September 11. I stand by that statement. At least in 2001, one could leave the City and escape somewhere else where life was still relatively normal. In this pandemic, there is no escape. It is pervasive. It alters our daily routines, habits, and life. It even alters our homes, which is the place of sanctuary for many. Your home is like your lair where you can freely be yourself, and now your place of refuge is being invaded by “working from home.” 

In trying to somehow wrap my brain around this pandemic and what it is doing to life, the only situation with which I can equate the current situation is when I was homeless. Even that is not completely accurate. The only parallel between homelessness and the pandemic is the stress and the scarcity. Trying to figure out how to get food and basic supplies. Other than that, the comparison is an oversimplification. I have someplace safe to live with my family. The only challenge is how to get supplies safely.

Below I am going to outline three coping skills that have made a resurgence for me in the current crisis. I honestly never thought I would have use for these coping skills again. I thought I had finally gotten to a point in life where they are no longer needed. I thought wrong. 

Old Habit # 1 

Toilet paper. Oh, yes, you knew I was going there, didn’t you? Toilet paper is the story of my life. When I was growing up, I would have to make one roll of toilet paper last 4-6 weeks. Now, due to the coronavirus, I have decided I am going to do the same.

I am going to make a 12-pack of toilet paper last for an entire year. I am probably going to be doing this until I die. 

Buying one 12-pack of toilet paper each year saves money. By using less toilet paper, I can take the $5 or $10 I would have spent on toilet paper and use it instead to purchase food. Yes, our economy is that decimated. Food shortages are pervasive and real.

I am supplementing my one roll of toilet paper per month with cloth baby wipes. Some people may complain that this creates more laundry. They are small. I do not think it creates more laundry. Plus, now that I am wearing pajamas twice instead of once, there is “space” for the cloth baby wipes because I am going through less pajamas.

In fact, I am actually saving water by using cloth baby wipes for pee. I flush my toilet less. When I use paper toilet paper, I typically flush the toilet every 2-3 uses so that the toilet does not get clogged with the paper. Using cloth baby wipes, I only flush the toilet once or twice per day. There is no paper in it, unless there is # 2, which gets flushed immediately. 

Old habits die hard: I am only using one roll of toilet paper per month, similar to when I was growing up and would have to save the nickel change from food stamp purchases to be able to afford one roll.

Old Habit # 2

When I was in grad school, I would work Tuesdays through Saturdays instead of Monday through Friday like all of the other executives in my office. My grad classes were on Mondays, so this worked well for me. Weekends were Sundays and Mondays. I loved it. 

It was also nice having a weekday off, because if I need to schedule a doctor or some other appointment, I could do so without having to take off of work. The only challenge was that some places are not open on Mondays. For example, I remember I could never get my hair appointment on a Monday because the salon was closed on Mondays.

Trying to work from home during coronavirus has been a challenge due to little to no internet service. I type things into google docs so that I can copy and paste into an email when I do have internet service. I hope that I can get things in fast enough to be able to send the message before I lose service.

Also, being that I am in the high risk group, I am extremely apprehensive at returning to the office and being surrounded by my coworkers who have many many more exposures than me. I do not feel that is a safe situation. I can only control myself. I cannot control people around me.

I have asked to change my current work schedule from the Monday through Friday back to the Tuesday through Saturday format, and it is going great! I actually get decent internet service on Fridays and Saturdays so I am able to get more work done. This is in contrast to Mondays, where I spend all day waiting for one web page to load, and it may not even be the web page I need. 

Also, if I do have to go into the office, which I did this past weekend, I have the entire place to myself. I can get things done with minimal exposure. I have always worked well independently.

Tuesday – Saturday work reminds me of when I was in grad school. Summer 2015 was one of the best summers of my life, so there are good memories of this work schedule. I feel good.

Old Habit # 3

 Make do or go without. This was the mantra of the Great Depression and it is again the mantra of the Great Depression part 2. It was also what got me through the 4 months of hell when I found out my rent on my apartment doubled (with 2 weeks notice) and I was trying to buy the house.

I have spent so much money on trying to get food these past two months that I have completely blown my budget. It’s different when you have to have other people shop for you and then reimburse them. It’s also hard when you are trying to keep a week’s worth of extra food on hand in case people can’t get to you right away. I am dependent on when other people go to the store.

I do not want to ask people to go to the store for me because then they are putting themselves at risk for me. So I’ve been telling people to let me know when they are going to the store for themselves and I will just add to their list. 

Throw in multiple food allergies to that mix and the food shortages of food allergy specialty items … well, it’s been rough.

So my mantra is to make do or go without. I literally have no extra money to spend on anything. If you are expecting me to “stimulate” the economy, forget it. The only thing I am doing is paying my essential bills and food.

To this end, I have cut out all non-essentials. That includes hair cuts. Hair salons are still closed right now anyways, and even when they do reopen, I do not feel safe enough to go back. 

I am going to isolate and socially distance myself for a very long time until I am sure this is over. It could be years, and I am okay with that.

This means I will be cutting my own hair. 

Previously, “make do or go without” meant that I only had my hair cut twice a year. My hair was really long – down to my butt. What I learned was that only getting it cut twice a year saved me money but was horrible for my hair. My hair ended up so damaged that I ended up having to get it cut into a bob. 

Many people have said that I should grow out my pixie and that I can save money on haircuts by just letting it grow long again. The problem is, that is not healthy. Plus, long hair is a major pain. Now that I have had a pixie, I am not going back to long hair again.

I finally got a pair of clippers and buzzed it off. The clippers were $60. Since I usually pay $50 for a haircut, it will only take two hair cuts for the clippers to pay for themselves. If I do not go back to the salon and continue to do my hair myself, that is money saved I can use for food.

It is going to be a very long time, possibly even years before I will feel safe enough to go back to a salon, to be honest. Make do or go without. I am making do by cutting my own hair. I will go without the salon. 

Another way in which I am making do or going without is air conditioning. I still do not have enough money to get air conditioning for my house, even though it is medically necessary. Heat exacerbates my neuro symptoms. I have to go without, so I am making do.

We are supposed to get a heat wave later this week. I do not have money to buy any more black-out curtains for the windows, so I am going to go ghetto and tape towels and blankets over windows in addition to the curtains I do have. The more I can block the light, the cooler it will be in the house. Or, at least, I hope so. We will see how bad my neuro symptoms get. 

I am making do and going without air conditioning because I can’t afford it, no matter how medically necessary it may be.

What old habits do you have that have come back to help you cope with the pandemic?  

 

Isolation Log: Covid Date 9.a.20

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Jolene is a happy baby.

Bubble space. It’s a pretty simple concept that I would teach to all my pre-school students back when I was teaching. I spent over a decade as head teacher in an inclusive classroom in the public school district.

An inclusive classroom meant that my class size was limited to 14 students, about 25% of them had some sort of disability (usually on the autism spectrum), and I had a dedicated teacher’s aide in the room with me at all times. In addition to the dedicated teacher’s aide, there would be other professionals such as occupational therapists, physical therapists and social workers who would frequently be in the classroom working with a particular student on a certain skill or with a topic.

My weekly lesson plans included not only the basics such as letter recognition, pre-reading skills, science, colors, numbers, but also social and emotional skills. We would use modelling and positive reinforcement to help teach kids how to be nice to others.

One of the big social emotional skills taught in my classroom was the concept of bubble space. As many of the children in my classroom were on the autism spectrum or had some sort of sensory disability, many of them did not like to be touched. 

I would teach all the students that they live in their own personal bubble. If you take both your arms and hold them out, that is your imaginary bubble space. If you measure fingertip to fingertip like that, it is also supposed to roughly equal your height, but I digress.

Kids were supposed to ask before entering someone else’s bubble space. For example, you should ask someone first if it is okay to hug them. This was also a great exercise in teaching kids the difference between good touch / bad touch for abuse prevention. If someone enters your personal bubble space in a way that is not okay with you, then you need to say something about it. Always tell two adults. This is in case the first adult does not do the right thing (report it), hopefully the second adult will.  

The point is, everyone has a personal bubble space.

Now, I have seen a marked decline in society since I stopped teaching pre-school. I’m not sure what has happened to people from the time they left my classroom at age 5 to adulthood, but it seems like the entire world has forgotten the concept of bubble space.

Do I need to go back to teaching pre-school and invite all of the adults? Get with the program, people! Bubble space!

Bubble space is essentially the same thing as social distancing. For some reason, many people, or, at least, many people in my area, are unable to social distance. Why do you not understand the concept of bubble space? Four year olds get it, but the adults have forgotten.

It’s not hard. Yet people do not seem to be able to do it.

I live in a bubble and I would appreciate it if people would respect my bubble space and not enter my bubble. 

Why is this concept hard?

Bubble space is no longer a part of the manners I teach to pre-school children. Bubble space is now a life and death concept for every human being on the planet.

This is a reminder from one of your educators to please remember what we taught you in pre-school and respect the bubble space. It’s not hard. I can’t get over the fact that 4 year olds get this, but somehow adults don’t. 

Did you get dumber as you got older? Or do you think once you hit the age of 5 this no longer applies?

Maybe someone needs to hire me to teach adults now instead. 

Wear a mask and stay 6 feet away from people.

Isolation Log: Covid Date 8.a.20

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I finally got a nice photo of Simon. He is sitting in the fabric box.

What can I say? We are going to re-open too early. It is glaringly obvious that some people think the economy is more important than human life. So people will die and nobody cares. Wave two will be deadlier than what we have experienced. Or, at least that is what the history of pandemics tells us.

Where I am, the food shortages are getting worse. I am now out of anything to make breakfast. I have used all of my allergy-friendly flour. There is none to be had in the stores. The order I placed online in March has yet to arrive. I do have three boxes of allergy friendly cereal, but no allergy friendly milk. The milk status is the same as the flour status.

I do have rice, beans, chicken, pork chops, potatoes and carrots, so I can make food. I just won’t be having traditional breakfast foods. I can no longer make breads or muffins.

The health department only counts confirmed COVID cases, not presumed positives. This means, you have to be tested. My county just started testing for COVID-19 last week. We have been quarantined for almost 2 months, yet they JUST STARTED offering testing now. Sounds smart, doesn’t it?

They say because we only have 33 positives, we are doing a great job and can re-open. Yet there are 140 presumed positives quarantined because there was no testing in this county prior to 7 days ago and they do not have transportation to get tested. 

No one wears a mask. When I drive the car once a week to keep it going, parking lots at every single business I pass are full. My neighbors are having house parties every week because they are out of work. There are groups of 10-15 people running around between 5 different houses.

Three times I have narrowly avoided neighbor kids getting way too close to me during my daily outside time. They say that coronavirus is a hoax. They taunt me and say they can get as close as they want to me because coronavirus is not real. My doctor told me, coronavirus has a 90% chance of killing me given my medical history. But according to the neighbors, my doctor is lying.

I like to have daily outside time, and it makes it hard to go outside my house when people think none of this is real and try on purpose to infect others. There is no recourse for this behavior. The police have other things to do.

The house next to the one with the evil children in question is COVID positive. That person spent over a week in the hospital with a 105 temperature. Yet, the neighbors still think COVID is not real. We are all just having one awesome vacation.

I know 3 people who have died from COVID and 2 more who currently have it. Yet, according to everyone in my county, none of this is real.

Welcome to the Twilight Zone. 

I haven’t been feeling well in the past week or so. My doctor’s office said since I am in the high risk group, I should go to the hospital. But there is nothing anyone can do. There is no cure. They try to make you comfortable. I do not want to go to a hospital. I will either live or die in my house with my cats. I am comfortable here. I’m not getting close to other people, so I’m not infecting anyone. (To be honest, I do not think I have COVID. I think it is my neuro issues acting up). 

Unlike my neighborhood children, who are actively trying to spread the “fake” disease that they think is so hilarious. It’s the new game they are playing since there is no school and no internet here to do school online. You can only sit a kid down with a worksheet for so long.

On to the positives – 

I am really happy to be home with the cats. I am thankful for this house. I may be a reluctant homeowner, but I can tell you, I am thankful for this house now. This house has survived both World Wars, the Spanish Flu, and the Great Depression. It will survive COVID and the Great Depression part 2.

People are still dropping supplies off to me by using my cooler. I cannot tell you how grateful I am for that. The fact that food is delivered to my cooler reminds me that there are good people in this world. That’s one of the few things giving me hope right now.

This week, in addition to the 2 bags of groceries in my cooler, was a small bag of 5 cloth face masks. Even if no one else in my area uses face masks, I do. Face masks have been proven to work.

While people have been good about bringing me food, I have been so focused on food (and what I can’t get due to shortages), that I have forgotten about other supplies. My calendar this week reminds me I need to change the furnace filter and it is the last one.

I placed a call to my local, small business hardware store from where I usually get the filters to see if they are open. Not only are they open, but I have an appointment day and time next week I can go there to get the filters. Since I am in the high-risk group, they are going to make it even easier for me. Not only am I going at a special “low traffic” time, but they told me to call from the parking lot to pay by credit card, and they will bring the supplies out and put them in my trunk so I have zero human interaction.

Now, the doctor told me I am not supposed to go to the grocery store or pharmacy because I am in the high risk group, but I think a transaction like the one the hardware store is offering me will be okay. That is essentially how I am getting food anyways – people leave things in my cooler. Except this time, the hardware store will be putting things in the car trunk for me.

God bless the essential workers and everything they are enduring right now to keep us supplied and safe. Not only is this hardware store keeping me safe, but it seems like putting things in my trunk is safer for the employees as well. 

This will get worse before it gets better. We are reopening in a few week and many more people will die. At some point, I have faith that people will get a clue and realize that human life is more valuable than the economy. 

The fact that people are putting food in my cooler for me is what gives me that hope in humanity.

Thanks. 

 

Welcome to My World

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Jolene likes to sit in the kitchen sink.

Every day I leave my house, I never know if I am going to come home. I could have an allergic reaction while in the community and end up in the hospital. Back in 2014 when I was still teaching, one of my students spilled milk in my lap. I have a severe dairy allergy and went into anaphylactic shock once the milk absorbed into my skin. I was intubated, and then spent several months in ICU on a ventilator along with kidney and liver failure.

This is how I live every day. If you think my dairy reaction is bad, my nut reaction is worse. It has now been over 10 years since I have had an allergic reaction due to something I have ate. All of my reactions have been from touch.

For example, if someone has been eating handfuls of almonds, then gets in an elevator and pushes a button, they have transferred nut oils to that elevator button. If the button is not properly cleaned, the nut oil will live on that button for up to 21 days before the protein breaks down.

If at some point in that 21 days, I get in the same elevator and push the button, I will have a nut reaction. How severe my reaction is depends on how much of the nut oil I absorb through my skin.

I always have what I call “allergy spots” on my skin from touch reactions. These are open wounds that sometimes bleed, sometimes leak clear fluid, and take several months to a year to heal. If I absorb enough of my allergen through my skin, I have the whole stop breathing and need an epi pen reaction that sends me to the hospital.

Every single day I leave my home, I don’t know if I’m going to touch something that is going to cause that reaction or not.

With current events, COVID-19 is operating on a similar basis. We have learned we can catch the coronavirus from surfaces. We can catch the coronavirus from asymptomatic carriers. Every day we leave our house, we don’t know if we are going to be exposed to the coronavirus or not because it is every where and it is invisible.

Welcome to my world with severe food allergies.

The world we are living in right now that involves masks, cleaning supplies and gloves is the world I live in every single day. Except instead of trying to kill coronavirus, I try to avoid nut oils and dairy that have the potential to kill me.

I was talking to one of my friends this week who made the comment to me that they can finally empathize with my disability of having several severe food allergies that react by touch. There is not much difference for me dealing between dealing with the coronavirus and my food allergies. Both are invisible things that yield the same result: intubation, a ventilator, and possibly death.

If my food allergies had an 80%+ chance of killing me before this started, I now have a 90%+ probability of death if I have a reaction during the coronavirus. 

While the coronavirus situation is not easy for anybody, I am hoping that the experience will give people a little bit of insight as to what life is like for people with severe food allergies every single day. 

This is a horrible way for people to empathize with what we live through, but here it is.

So the next time you complain about having to wear a mask and gloves when you go out, think of people who live with this concern every day. People with severe food allergies like mine go to work, school, and stores every day of our lives not knowing if today is the day we are going to touch something that causes a reaction that will send us to the hospital.

Hopefully the good hygiene habits of wiping down surfaces and washing hands will continue once the pandemic is over. It is not just COVID-19 that kills people, but things like nut oils too. You may enjoy that peanut butter sandwich, but to someone else it is lethal.

Isolation Log: Covid Date 6.a.20

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Simon jumped into the recycling bucket after he threw one of his toys in there. I helped him to get it out.

When this is all over, I want pizza. 

It sounds like a simple request. Restaurants are open for take-out and delivery right now. The challenge is that I have multiple food allergies, so I can’t just eat any pizza. It has to be allergy friendly pizza. The nearest restaurant that makes allergy friendly pizza is over an hour away. They can’t even get the ingredients to make the allergy friendly pizza.

Normally, I would be able to get a frozen daiya (allergy friendly) pizza. However, with the food shortages, they are not currently available. With the food shortages, I cannot even obtain the ingredients to be able to make one at home. I do cook almost all my food from scratch, but I like to treat myself to a daiya pizza about once a month or so. 

The “specialty” items that people with food allergies require for everyday life are not considered to be “essential” items. Unfortunately, the food allergy community is hard hit in this pandemic right now. 

When the only thing left on the grocery store shelf is a jar of peanut butter and you have a nut allergy … no one should have to make the choice about whether they want to die of starvation or die from eating something that will kill them. However, that is the situation that some people are experiencing in our community right now.

I realize that everyone is making sacrifices right now. I am very happy that I do have food to eat. I guess it’s just hard when there are certain comfort items you want and cannot have because they are not available. So, yes, I am whining that I don’t have pizza. It’s a first world problem. I will eat my lentil loaf for dinner tonight. I am making vegetable soup in my crock pot tomorrow. 

As soon as allergy friendly pizzas are available again, I want one. I think that everything I “want” right now is a food item that is unavailable due to the food shortage.

Food shortages are real, folks.

I am very fortunate that I have people helping me with supplies. I have food and everything else that I need.

Right now, we are sitting tight waiting for anti-body testing so that things can reopen. The world will not be the same after this. We all have to try to find a new normal. Anti-body testing is probably a pipe dream, since there is no covid testing of any time in my county. We just have to hope that we can ride out the second and third waves of this virus.

What foods are you looking forward to having when they are available again? Hopefully the food shortages will end soon and not get worse.

Stay strong out there. #NYTough

Isolation Log: Covid Date 5.b.20

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Snow in my backyard on April 16, 2020

Ending the shutdown and going back to work right now is a terrifying thought. No job is worth your life. In the past 7 days, three people I know have died from COVID- 19. I know 2 right now who have it, but are not hospitalized. This is not getting better. It is getting worse.

Testing in my area does not exist. Only the rich and privileged who have access to a vehicle and can drive can be tested. The nearest testing site is an hour away. I know someone who drove to the testing site and was tested. They passed out after the test and almost got into an auto accident on top of everything else. Many testing sites are drive-thru style, yet the test makes some people pass out.

With lack of testing, the numbers reported in my county are very low. There is also inaccuracy in reporting. One of the people I know who has died was a nurse and has lived in her house for 20 years. Instead of her death being reported in the county in which she owned her home, her death was counted in the county in which she was born. It doesn’t make sense to me.

I guess it doesn’t need to make sense to me. The point is, the virus is everywhere. 

Opening the economy is not worth all this death right now. Public health officials need to get a handle on this before we all go back to work. Hell, if you look at my street and the area in which I live, we are not under any restrictions whatsoever. People are still out doing whatever they want in large groups and driving all over the place. From where I sit, people in my community are going about their everyday lives as if people we know and love are not dying right now.

Maybe I’m just special in that I know 3 people who have died. I guess I have a different perspective.

The COVID response is not going to end with some sort of economic stimulus plan or some big go-back-to-work package. The only way this is going to end is through widespread societal structural changes that the US will never do. So I expect that we will see the death toll to continue to rise and be large.

In happier news, many people in isolation think this is all fun and games and have been sharing stupid things they are doing. 

My stupid purchase right now is that I ordered another set of World Series DVDs. This particular World Series has been on my wish list for a long time. However, the DVD set has always been in the $300 range. With everything going on, the price of the DVD set is down to $50, so I ordered it. 

Yes, it was a non-essential purchase. Yes, I feel bad for having something stupid like that shipped to me. The way I was thinking about it is that if I’m going to die, then I want to see that particular World Series before I die. I’m considering it both my birthday and my Christmas present this year since I did not get anything for my birthday and who knows who will still be alive come Christmas.

Of course, there is a delay in shipping for non-essential items. I probably will not receive the DVD set until next month at the earliest. Everyone else has cable and internet to watch things. I just have a DVD player. I already viewed all of the DVDs I had checked out of the library and am now reading through my stash of books.

What non-essential or wacky purchases have you made in isolation? 

Stay strong out there. #NYTough

The Toilet Paper Chronicles, Part 3

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Daffodils finally came up that I planted last year

Ok, ok. I am starting to have melt down over toilet paper. Can you blame me? Do you know how I grew up? (homeless and without toilet paper – read the Toilet Paper Chronicles, Part 1). 

I think I held up pretty well under the circumstances. I typically have one open package of toilet paper and one unopened package of toilet paper for back-up. When the doctor told me I am no longer allowed to go to a grocery store or pharmacy last month, I had one open package of toilet paper that was about halfway gone with no back-up.

When the toilet paper that I had ordered online 4 weeks ago arrived today, I was down to 2 rolls. 

Granted, I did have back-up. I have a box of kleenex. I have been saving my newspapers instead of recycling them. I also took one of our fleece blankets and cut it up into squares. I even went so far as to order cloth baby wipes off of Etsy last week. They arrived way quicker than my toilet paper and feel like heaven.

Yes, I have gone to the dark side of using cloth toilet paper for pee.

Yes, it sounds gross. But my mother, and many other mothers out there, cloth diapered their babies. If you can use a cloth wipe on a baby, why can’t you use one on an adult? I was reserving the rolls of toilet paper I had left for # 2. That’s what toilet paper was used for when I was homeless as a child. It was the only way to make one roll last a whole month (or for as long as you could). 

The toilet paper that I had ordered online was actually commercial toilet paper. All household toilet paper is out of stock both in stores and online and has been out of stock for the past 4 weeks. So when I was on the internet a few weeks ago, I ordered the large 9-inch commercial rolls from a website that services places like restaurants and gyms. It was the only toilet paper I could find.

I don’t care that the large 9-inch rolls will not fit on my little dispenser. Toilet paper is toilet paper. It works no matter what size the roll. 

I am still going to be conservative with my toilet paper and ration it for # 2, just like how we used to do when homeless. I am going to use my cloth baby wipes for # 1. It’s just like camping, really. I mean, have you ever peed outside? What do you do then? 

My goal is to make the 12 rolls of toilet paper I have last for  6 months or more. Or, at least until the world stops losing its collective mind over toilet paper. I get it. I really do. There is not much we can control right now. We can control the numbers of toilet paper squares we use. 

I guess I have now officially switched almost all of my paper products to cloth. First it was cloth handkerchiefs, then cloth napkins, then cloth cleaning rags. Now it’s cloth baby wipes. Anyone else have experience using cloth toilet paper / cloth baby wipes for pee? 

 

Isolation Log: Covid Date 5.a.20

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Hair I cut off my head this past weekend

Oh, yes, I did.

The special hair cutting scissors I ordered arrived last week and on Saturday morning I cut my own hair.

It was difficult.

I have never cut my own hair before. I have never cut anyone else’s hair. I have never even cut the hair on a Barbie doll before for fear of getting beat as a child. Even when I started to cut, I was looking around expecting my grandmother or some other adult to jump around the door frame and start screaming at me. 

So actually taking a pair of scissors to my own head was a pretty big deal. 

I also love the pixie cut that my stylist gave me. However, my appointment was scheduled for the day after the shutdown began, so I have gone 9 weeks without a haircut, when it is usually done every 5 weeks (and by week 5, I am totally annoyed – it should probably be done every 4 weeks).

My goal was to only cut the pieces that annoy me.

Apparently, there were a lot of pieces of hair annoying me. I cut enough hair off to fill the dust pan. It looks horrible. My stylist usually buzzes around my ears and the back of my neck. I can’t handle either of those two areas. Do you know how hard it is to cut your own hair on the back of your head?

I feel great! 

My hair may not look good, but it feels good. I am much happier washing it in the shower since I have cut it. It is no longer hanging down in my face. It does not stick up as much when I wake up in the morning.

When this is all over, I will go back to my stylist to fix it. I am not sure if I want it to be “fixed” or if I want it to be all buzzed off. 

I love my pixie because it is so low maintenance to have short hair. It is way easier for me in the shower, it is the perfect hairstyle for running, and saves me money on allergy-friendly shampoo (which runs at about $5 for a single ounce). 

If I buzz my hair, then maybe I can also cut down on salon visits. I am thinking about it. Right now, I just got these special hair cutting scissors that I can use to trim it myself. I am still waiting to receive the pair of clippers I ordered online – they are on backorder. We will see what I think about buzzing all my hair off when the clippers arrive or the isolation breaks – whichever comes first.

Right now, I am really happy with my self haircut, even if it doesn’t look great. Now I know why so many 4 year olds would cut their own hair when I was teaching preschool. And it completely makes sense when their response was “Because that piece of hair was annoying me.” 

Stay strong out there. #NYTough