A car alarm pierces the silence of the night. Everyone has been off the streets and in their house for hours. In fact, many vehicles have been parked all day. When I look out the window to see why the car alarm has been going off for 12 minutes, I see two kids next to the vehicle in question. They are head-banging and jumping up and down.
They have been out of school for less than a week and this is how they decide to have fun. I have already gone to bed for the night. I have to work in the morning. This was an unpleasant way to be woken from sleep.
It has been a very long year this week.
All of my health providers called to cancel my appointments this week. I cannot see the neurologist, the physical therapist, or my masseuse. Even my hair salon is closed. My back-up plan for when my hair drives me wild is to shave my head. Desperate times call for desperate measures. I’ll keep you updated on whether that ends up happening or not.
The only physician who not only wanted to see me this week but actually insisted on seeing me was the primary doctor. I could not figure out why. No one else wants to see me, claiming I am “high risk.” I do not understand why.
When I did go to see the primary doctor, she sat me down for almost an hour to talk to me and now I understand why no one else wants to see me and I am so “high risk.”
Apparently, the MS is in my spine. Your spinal cord controls breathing. I am high risk for any illness. Even a cold will make me more sick than the average person. Covid would be lethal for me. I was told to stop going to the grocery store and the pharmacy – those are high risk areas for me. The doctor helped me to come up with a plan that will hopefully keep me stocked with food and medication to be completely isolated during this time.
I am encouraged to be outside in fresh air as much as possible. I need to keep running so that I can keep moving, especially since I no longer have access to either physical therapy or massage to help me.
I go to work and I come home. That is it.
The libraries are all closed. This past Tuesday we had our last book club. I checked out 14 items from the library (books and DVDs) that I am allowed to keep until May 1 while the libraries are closed. I came home with an entire reusable bag of library items – my version of “tp hoarding.”
Of all the stupid things, I cried Tuesday night after the library closed for an indefinite period of time. The library is my lifeline. I always have something checked out of the library. I constantly inter-library loan. I know the librarians at 6 area libraries all by name and they know me. Libraries were a safe place for me during the times in my life when I was homeless. They are a safe place to take a nap.
Yes, I have enough books and DVDs in my house to keep me occupied. It’s just the idea that the libraries are closed. It breaks my heart. I guess this is an example of a first-world problem.
I am very grateful that people have been calling and checking on me to be sure I am okay. I am okay for now. But there will come a time in the next few weeks when I will need to have help. It is very hard for me to ask for help.
I tend to be isolated to a degree in life to begin with due to my severe food allergies. The interactions I enjoyed by going to the gym, the library, and the coffee shop are now gone.
Back and forth from work to home and nothing else.
I will keep you updated as the isolation continues. Of course, I had to choose a Star Trek reference for my posts. This is covid date 1.a.20, meaning week 1, day a of this week (first blog post of the week) and year 2020.
This will get worse before it gets better. But we are all in this together. Be safe and healthy.